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Last update on: 08/03/2009

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PanCare

Pan-European Network for Care of Survivors after Childhood and Adolescent Cancers

PanCare is an acronym for:
Pan-European Network for Care of Survivors after Childhood and Adolescent Cancers

How PanCare came into existence

The network was developed by the common interest of pediatric oncologists who had actively participated in the first European symposium on late complications after childhood cancer (ESLCCC 2007) in Lund, Sweden, in 2007, and of those participating in the activities of the early and late toxicity educational committee (ELTEC) of the I-BFM study group.

 

In March 2008, PanCare was founded in Lund, Sweden. Today, the scientific excellence of the well-structured network is based on pediatric oncologists and scientists from 18 European nations. There are three executive representatives: Lars Hjorth, responsible for the working group “framework”, Rod Skinner, responsible for the working group “survival & care”, and Riccardo Haupt, responsible for the working group “research”.

The main goals of PanCare are to:

  • promote research on questions that can only be answered in a multinational and collaborative approach (i.e. research of late sequelae such as secondary malignancies in children and adolescents)
  • optimise the care of former childhood cancer patients by elaborating general guidelines for the follow-up and aftercare of survivors and their families by facilitating equal access of survivors to education, jobs and insurances and guaranteeing their social re-integration
  • establish a Pan-European network to achieve these future objectives

The importance of PanCare - Background story

uring the last four decades, the prognosis of childhood cancers has improved dramatically. As a result of the medical progress, children and adolescents with cancer have survival rates approaching 80 percent which is a much better rate than adults diagnosed with the disease today. In the European industrialised countries, the number and age of long-term childhood cancer survivors is steadily increasing.

But survivors of childhood cancer may face long-term health problems well into adulthood

Former childhood cancer patients may suffer from:

  • the possibility of cancer recurrence and/or an increased risk of late sequelae due to their treatments. Survivors may suffer from severe and chronic late effects requiring prolonged or permanent medical care during adult life.
  • psychosocial problems in the fields of education, jobs and insurances

 

For detailed information, visit the general public website

Further data on the topic “Aftercare of childhood cancer survivors” are free for download from our material repository

A Pan-European cooperation to push forward the study of related problems and needs

PanCare wants to establish a pan-European network on awareness and care of childhood cancer survivors, since new treatments might increase survival, but also at the same time late mortality because of very aggressive treatments used to “cure” the original cancer in children and adolescents.

It is the aim to

  • push forward research of treatment-related effects in childhood cancer survivors (This research is also referred to as “new science” by Dr. Anna T. Meadows)
  • raise awareness of the urgently required support of former childhood cancer patients and emphasise the economic aspect of social reintegration